Today is 111 days away from home and well today was one of those days that you wake up and just want to stay in bed all day. And that is pretty much what we did. I woke up with a horrible sinus thing going on. I am pretty darn sure it is a sinus infection. Ugh! I knew it would happen at some point, but was praying it would hold off until we got home where we could at least be a floor apart from Ariauna or she could at least hang out in her own room away from anyone else. Unfortunately, it hit sooner than I would have liked. I felt miserable all day long, but on the thankful side, I am so grateful we are on day +82 and not day +7 or something when she had absolutely no counts. I have prayed my heart out during this whole transplant process that I could be well enough to be with Ariauna and that I would not get sick while she was inpatient because I did not want to have to stay away. So even though I feel like crap today, I am so grateful we made it through the toughest part without sickness. There really is not a lot to say about today, other than we pretty much had a pajama day and stayed in our own room all day long. We literally went down stairs got our food and came right back up.We tried to keep us all separated in different areas of our not so big room. Our friends here in Minnesota text'd this morning to see if they could come by later today, but I had to turn them away due to our colds. I normally do not say no to things, but I really do feel like crap. I did manage to get a few pictures today and we really just had a lazy Sunday. We did pull out a new movie that we got at the American Girl doll store and watched it as a family. It was excellent, and just like the other American Girl doll movies it has great meaning behind it. This one was all about bullying, and I loved the message behind it.
I also got a close up picture of Ariauna today so you can see the little bit of fuzzy hair that is coming in. I know you have to look really close to see it, but she is so excited that there is actually hair coming in. I am not sure what is going to happen with it. One minute it looks a little dark and other times it looks blonde. I guess we will be surprised as it starts growing out what color it will be and how it will look. We have heard from other people that after chemo their hair came in really curly, can we only hope. Here is my fuzzy wuzzy little girl. I am really going to miss rubbing her bald head!The only other real excitement today was later this evening the girls decided since we were "stuck" in our room that they would do pedicures. They had a great time, and as you can see Jaxon wanted to be right in the middle of it.
And last but not least, here is a picture of Ariauna giving herself her night time medicines. It is so nice that she can help put them down her own tube.
Today I am thankful for my health through this whole thing. There were numerous times that other people were sick at the RMH and I was lucky enough not to catch it. Like I said, I prayed my heart out that I would be okay to take care of Ariauna through this process. I was doing everything I could to try to keep myself healthy, including doubling up my vitamins. I think it has all finally caught up to me. Lack of sleep, stress, the weather changing, etc. Hopefully, it does not stick around long and hopefully we can keep Ariauna from getting any of it. Sending love from Minnesota!




1 comment:
I was watching the Voice tonight and right when your blog came up, the song "Brave" started playing. I can never listen to that song again without thinking of Ari and how brave she has been. I also can't listen to it without crying thinking of all of the stuff that you have had to go through. I love seeing pics of Ari's smiling face and how cute they all look hanging out together.
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