BMT day +4

Today's daily photo is brought to you by Ariauna's Uncle Jeff and Aunt Jeni. Go Green Bay Packers!! We love you Uncle Jeff and Aunt Jeni.

WBC- <0.1
Hemoglobin- 8.5 (probably need a transfusion tomorrow)
Platelets- 21
ANC- not available right now
Weight- 51.7

We had a bit of a rough night last night with stomach pain and nausea. However when she slept, she slept good. It was just when she got up to use the bathroom, it was hard for her to settle back down. First thing this morning she was complaining of stomach pain and she started throwing up again this morning. I went out to join the staff for rounds about 9:00 a.m. After her throwing up 9 times yesterday they decided to add the Ativan nausea medicine in between the Zofran and doing them scheduled instead of just as needed. I think it helped a lot because she only threw up 5 times today, so better than yesterday. The cultures on her labs and her lines still shows no sign of any infection. They will continue the antibiotics that treat infections in her Hickman line and other infections just to be sure they are on top of it, in case the labs do start growing anything. Her fever this morning was 101.2 so they will continue to treat that with Tylenol as needed.  The doctors did come in to see Ariauna and told her she is doing fabulous. Everything that is happening is normal and she is doing great and is actually handling things great. Yay!

Last night I got an email from a dear friend and neighbor at home. She sent me these pictures of all the stuff she has been collecting for a yard sale fundraiser for Ariauna. Her house and garage has been taken over the last month and if you didn't know Sheri and you saw these pictures, you would definitely think she was a hoarder. These pictures are just the stuff in the house, that doesn't include her garage being full and having to park her cars outside for the last little while too.

I was amazed at these pictures and am so grateful to everyone who donated stuff for the yard sale. Thank you, thank you, thank you. Shortly after they got everything set out for the yard sale, we got these pictures from Karen.

Ariauna and I could not believe it. We immediately got on face time with our friend Brent who was there helping them set up. He took us around and showed us how much stuff there was. He let Ariauna say Hi to everyone that was there helping to set up and ready to sale stuff. We visited for awhile and then we let him go. Later we got a few more pictures of the yard sale. We love that a lot of people had their Ariauna shirts on. A lot of Ariauna's little friends in the neighbor hood were there helping and selling Ariauna wristbands, pins and otter pops. I just loved the cute sign Meshell was holding!

I was talking to my mom this morning about this yard sale and other yard sales and craft fundraisers that have been done for our family and I just had a good cry with my mom. I am so amazed and touched at the people who continue to do for our family. No one, can even imagine being in our families shoes unless you have been in a similar situation. This is not something we ever would have imagined happening to us and our family. I can not even express my gratitude to the people who continue to do and do for our family. The carnival last May was more than we ever imagined they could fund raise for us and those same people continue to try to raise money in other ways. The yard sale a few weeks ago in Herriman was a huge success and then Ariauna's ipad rang at about 4:00 today from the group at the yard sale to let us know how much they had sold and were donating to our family and it was of course a huge success also. I can not even think about these ladies and their families and all they have done without tears streaming down my face. These ladies all have a life, they are all busy with their own families and the chaos that comes from being a mom and yet they still continue to help us. It goes to show how much they love and care about us and that they are willing to do anything to help us. I hope some day I can pay it forward it some small way to another family who is faced with a difficult situation.I also hope that these ladies and their families know how grateful we are for all they have done for us.

Today I got this picture from another friend and neighbor. She said she had been thinking about us a lot the last few days, and that her youngest daughter had placed the Ariauna pin she got at the carnival here and that it had been there for quite sometime, but for some reason today it had really hit her. She sent me the picture and I just sat and cried. This little girl is I think about 4 (sorry if I am wrong) and yet look where she stuck it. She could have put the pin anywhere and I can think of a lot easier places a 4 year old could reach than that. It hit me like a ton of bricks and reminded me of the simple things. "I am a Child of God".... Such a simple phrase and yet such a beautiful one.  I have thought of that everyday since, and every time I look at Ariauna I am reminded that she is a "Child of God", he will help us through this. He will not leave us alone, this fight she is having, is a fight, but something she can do with her Heavenly Father by her side. Thank you Neve for being such a sweet girl and putting Ariauna right where she needs to be and thank you April for sending me this picture. It is exactly what I needed today!

 About 4:00, Ariauna felt like she was burning up so the nurses took her temperature and sure enough it was 102.3. The nurses got some Tylenol ordered for her and gave it to her as soon as it came up. You could tell she was slowly starting to go down hill and that she did not feel good at all. She wants so bad to tell people she is fine, even though I know she feels like crap. She wants to do things with me and she tries so hard to keep her eyes open, even though all the medicines she is taking are one's that make you sleepy. We actually did get a few games of Go Fish played this afternoon.

 She did get sick to her stomach again this afternoon and ended up using her puke bucket. Darn it! Poor girl. Right after she threw up she continued to say she wanted to do something with me. She decided we would color. You can see by this next picture that her coloring only lasted about 2 seconds and this is what happened. She was trying so hard to stay awake, she fell asleep with the pencil still in her hand like she was coloring. Bless her heart. She doesn't want to stop for 1 minute, but her poor body is telling her otherwise. Her little body is telling her it needs to rest. I keep telling her it is okay and she needs to rest. Her temperature continued to go down with the Tylenol, until of course the Tylenol wore off and then her fever went right back up.

As you can see she actually asked to get dressed today and out of pajama's. That was fun to see her in clothes again. Here she is sound asleep taking her long afternoon nap and the other picture of her is trying to get her temperature down. Poor kiddo!

The doctors and nurses and physical therapy really want them to get up out of bed a little bit. With throwing up and then a high fever, she really was not feeling the best. So I talked her in to just coming and sitting with me in the recliner and watching a show that our other FA family loaned to us. The new "Epic" movie. So we both got in the recliner and I just held her and loved her while we watched the show. However, while climbing up in my lap, the stupid IV pole was in the way and she bumped her eye on it, and now has a black eye.  Ugh!

We were both exhausted tonight. It had been a long night last night and tonight was not looking very restful either. I got Ariauna all tucked in and then I stayed up until almost midnight trying to catch up on the blog and many other things. I did get some bills paid today, so at least my family at home can have a house to live in for another month.   Today I am thankful for Ariauna, she is truly my superhero!