BMT Day +15

Today's daily photo is brought to you by the Hatch family.(dear friends and neighbors of ours). What a cute idea, and we love all your smiles. Thanks a bunch!

WBC- 0.7
Hemoglobin- 9.0
Platelets- 38
ANC- 0.3
Weight-52.36

Last night was a very long night. She was in a lot of pain from the mucusitis sores in her mouth, throat and stomach. She was up nine times during the night. I am telling you, this old lady is too old for this getting up a bunch of times in the night. This is so much harder than when I had new born babies. At least with a new born baby you could usually feed and put them back to bed. Ariauna is moaning and groaning all night. She is dry heaving and in so much pain. It literally breaks my heart to see her in so much pain. I think it seemed extra hard because I had just gotten a few nights of good sleep while Jerry was here when I went back to the RMH to sleep. Today was one of those days you wake up with a headache and you pretty much know it is going to be a long day, long before the day even starts. There was even one point in the middle of the night, that I could hear Ariauna talking to herself and trying to calm herself down. I could hear her saying "It's okay Ariauna, calm down". That in itself made me cry. There was no replacements needed last night.(blood, platelets, potassium, etc). During rounds they just decided to bump up her Fentanayl pain medicine, since she is still so uncomfortable and in pain. Otherwise the doctors still giver her and A++++ and say she is doing phenomenal with the type of transplant she had. Her schooling went okay today. She actually sat up and did it and even seemed a bit happy about it. We did get a couple of packages today and some cards which definitely brightened Ariauna's day.

 The Hendrickson's sent an American Girl Doll hospital gown (which I had never seen, even at the Mall of America) and an Amemican Girl Doll Just for Fun book with different activities to do. They also sent a Question and Answer journal and a fun pen. Thank you Hendrickson's for the fun package.

The other package we got today was from the Woodruff's (a sweet friend of mine, I met while working at Target). They sent me some things to pamper myself with!  I am looking forward to a nice warm relaxing bath. They also sent Ariauna and I more fun stuff to do our manicures with, and then Ariauna got a fun bead kit and a new cross stitch. Thank you Woodruff's for thinking of us and sending us a fun, relaxing package.

This morning we got Ariauna in the shower and while I showered her, they changed her bedding. Later today Occupational Therapy came in to play with Ariauna. They actually brought the Zoomba ball to play and then they brought some really fun suction balls to throw around the room at things that would stick. At one point they even had Ariauna draw a picture on the white board so she could try to get the balls to stick to it. She had a pretty fun time doing that.

 

 

Of course after therapy, Ariauna was exhausted and ready for a nap. She slept most of the rest of the afternoon. I don't think I have mentioned yet what a crazy sleeper she has been since being in the hospital. She was never like this at home before we came. I am assuming it has to do with her being in pain, being uncomfortable and being miserable. This next picture just shows some of the crazy ways I have found her while she is sleeping. I know she is awake in this one, but I now have to put all of the bed rails up on her bed at night because I am so afraid of her falling completely out of bed.

She woke up long enough to play Noah's Farkle (dice) game with me a few times and then she was too tired and went to bed for the night. Here she is peacefully, sound asleep. I love her so much and hope she gets feeling better soon. I hate seeing her on all these drugs and in so much pain.

Today I am so grateful for the power of prayer. I know there are so many people at home that are praying for us and I know it is those prayers that help Ariauna and I make it through each and every day. I am grateful to know my Heavenly Father hears and answers my prayers and that I can pray to him anytime and anywhere. There have been numerous times since we have been here that I have prayed my heart out and asked for him to help guide me though the next few challenges. I know without a shadow of a doubt that my Father in Heaven and my Savior are by my side each and every step of this journey. Thank you for all the prayers being said in our families behalf.