BMT Day +22

Today's daily picture is brought to you by Ariauna's cousin Ashlee who is going to college in Colorado. Thanks Ash, we love you!

WBC- 1.6                 29 days in the hospital
Hemoglobin- 10.5      51 days away from home/kids
Platelets- 12
ANC- 1.0
Weight- 53.68

The nurse's brought Ariauna's lab results in bright and early this morning. We were so excited her ANC went up again today! Yay!  During rounds today we discussed that her puking is better and her diarreah is better so they are not going to do the scope they had scheduled today. They will just keep an eye on her for now and if it gets worse then they will scope her. She has still been in some pain and since they quit the morphine and switched to the Diladid it has been okay but she ends up getting in pain sooner than they would like so today they decided to change it to every 4 hours instead of every 6 hours. Ariauna's teacher came at 9:00 today and it was a complete nightmare. Ariauna was not happy and was having an attitude and did not want to do anything. Sometimes I feel so bad for the teacher as I know it is her job, and I try really hard to bribe Ariauna to get up and do it but then I also feel like she has been through hell and I really can not blame her for having an attitude. This is the point where I have to some what step back and realize if I did not feel good, doing school would probably not be on the top of my list either. The teacher finally left at 9:30 frustrated and probably not really happy. Oh well, hopefully tomorrow will be a better day. After she left Ariauna and I did have a long talk about how important school is and that Mrs. Julie is not coming in to work with her for the teachers benefit but to help Ariauna succeed. I told her that if she didn't feel good to do school then that was fine but then she shouldn't feel good enough to be up on her ipad playing or out riding the trike in the hall or any other fun activities that she likes to do. (That was the mean mom in me trying to make her realize that school was important). I told her that there was no playing today until we could get her homework done. She was not very happy with me, and she pouted for quite awhile today. She had a rough morning and continued to have an attitude with me and anyone else who came in the room. She had a good cry again this morning about our dog Taz passing away yesterday. She still just wants him to be there when she comes home. I wish I could just magically make that happen. I understand how she feels because I can not imagine going home to our house without him there either. Breaks my heart! She was really itchy all day today and so they had to keep giving her Benadryl which makes her sleep so she spent a lot of the day sleeping. Maybe that is what she needed is a little bit of rest. 

While Ariauna rested, I hung up all the cards she got from her school class at home. Some of the kids did a fabulous job on their cards. They were beautiful and Ariauna loved reading each of them, but I decided it was time to hang them up.

 Today I got a phone call from the nurse at our pediatrician's office asking me to give her daughter a call. Her daughter works at the Maurice's at Jordan Landing and they are in the process of doing a fundraiser and would love to do it for our family. I was overwhelmed and once again was brought to tears to think that they would do this for our family. I am so very grateful once again for the amount of love and support we have gotten from family, friends, neighbors and the community. I feel so blessed by all of the acts of service in our behalf. I did give her daughter a call and we had a good little visit about Ariauna, the disease she has and she will get back to me with more information about the fundraiser they are going to do. Once Ariauna finally got up for the day, which was late into the afternoon she seemed like she was in a much better mood. She begged me to go for a ride on her trike and promised me that after she would do her homework. So off we went, out in the hall for a ride on the trike. We even stopped by the play room and no one else was there, so we went in for a few minutes.

We came back to the room and did her homework and she was in a much better mood and did it all and was happy about it. Later on this evening, one of the Care Partner volunteers happened to poke their head in to see if Ariauna wanted to play with them. Ariauna was excited and wanted to, I was amazed. So I told Ariauna that I would go get my dinner and I would sit in the meeting room just next door and work on the blog. It was a much needed break, probably for both of us. She enjoyed playing with someone other than me and I enjoyed getting out of the room for a bit. I was in the other room for about an hour and a half when I decided the Care Partner was probably getting tired of being in there, so I went back. They were having a great time doing crafts and had played some games. The volunteer left and Ariauna and I settled down for the night. I got Ariauna all ready for bed and then I had myself a much needed treat (Thanks LeeAnn and Ronai). I have been savoring my ice cream and only eating a little at a time, to make it last longer!  It was a great way to end the night.

Today I am grateful that Ariauna was doing a little bit better so that they did not have to put her through yet one more test/procedure. I am grateful that as of now they are not going to do the scope. I am so grateful for a Heavenly Father who hears and answers our prayers and who loves us enough that he is continually by our side helping us through this journey day by day. Sending love from Minnesota!